Your health information, explained.

Consumer health data we collect

"Consumer health data" means personal information that identifies, or could be used to identify, your past, present, or future physical or mental health. Depending on the study and what you choose to tell us, we may collect:

• Health conditions, diagnoses, symptoms, and when they started
• Treatments, procedures, and therapies you use or have used
• Prescription and non-prescription medications, and medical devices
• The types of healthcare providers you see and how you get care
• Caregiving information about a person you care for, including their health conditions and treatments
• Health-related information in your answers to screening questions for a particular study

How we use consumer health data

• To find out whether you may qualify for research studies and to match you with studies that fit
• To contact you about studies, confirm that you meet a study's requirements, and schedule your participation
• To prevent duplicate or fraudulent participation and to confirm study quotas are filled accurately
• To respond to your requests and to keep records our legal obligations require

We do not use consumer health data for advertising, and we do not sell it.

Where the data comes from

• Directly from you, through your profile, screening questions, phone calls, and emails with our recruiters
• From a caregiver or family member who signs up on behalf of, or provides information about, a person they care for
• From research clients who give us a list of people to contact for a specific study, under a project agreement

Who we share consumer health data with

We share consumer health data only with your consent, or as needed to provide a service you asked for. The categories of data we may share are the health-related answers and screening results connected to a study you agree to join. We may share them with:

• The research team for a study you agree to join: the company or research agency running that study and its moderators, so they can confirm you meet the study's requirements.
• Service providers that work on our behalf: secure database and website hosting, email and text-message delivery, research session and video platforms, and incentive payment providers. They may use the data only to perform services for us.
• Authorities, when the law requires it: for example, to respond to a valid legal order.

RC Horowitz does not share consumer health data with affiliates. When you agree to join a study, our recruiter will tell you which research team will receive your study information.

Your consent

We ask for your consent before we collect health information in your profile or in screening questions, and we ask for your separate consent before we share it with the research team for a study. You can say no or withdraw your consent at any time. If you withdraw consent, we will stop collecting and sharing your consumer health data, though we may not be able to consider you for some studies.

Your rights

You have the right to:

• Confirm whether we collect, share, or sell your consumer health data (we do not sell it)
• Access your consumer health data, including a list of the third parties and affiliates we have shared it with and how to contact them
• Withdraw your consent to our collection and sharing of your consumer health data
• Delete your consumer health data, including copies held by our service providers. Deletion from backup systems may take up to six months.

We will not treat you differently or unfairly for using these rights.

How to make a request

Email participate@rchorowitz.com or call (212) 779-3633 (Monday–Friday, 9 AM–5 PM Eastern). Tell us which right you want to use. We will confirm your identity before acting, usually by checking the contact details on your profile. An authorized agent may make a request for you with your written permission.

We will respond within 45 days. If we need more time, we will tell you why and may take up to 45 more days. Requests are free, up to twice in any 12-month period.

Appeals. If we decline your request, you can appeal by replying to our decision with the word "Appeal" or by emailing participate@rchorowitz.com. We will respond to your appeal in writing within 45 days and explain our reasons. If your appeal is denied, you may contact the Washington State Attorney General at www.atg.wa.gov/file-complaint, or your own state's attorney general.

Contact us

RC Horowitz & Company, Inc.
11 Main Street, Chester, NY 10918

Email: participate@rchorowitz.com
Participants: (212) 779-3633
Toll-free: (888) 392-5000